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Lupus Organizations You Should Know About

Lupus, or systemic lupus erythematosus, is a chronic autoimmune disease which attacks and damages the cells and tissues. This autoimmune disease has the potential to affect any part of the body, and no two cases of lupus are ever exactly alike. The immune system of a person with lupus can’t tell the difference between foreign harmful substances and the healthy tissue, so it creates autoantibodies which will attack the healthy tissues of the body. This then causes the chronic inflammation which can affect the skin, brain, kidneys, joints, lungs, heart, and nervous system. If you have already been diagnosed, be sure to check out some of our Lupus clinical trials in Birmingham, AL.

Lupus Awareness

It is estimated that there are at least 5 million people around the world who live with this chronic autoimmune disease. In the United States alone, there are 1.5 million people who are estimated to have lupus. Even more shocking is that 90% of all cases of lupus are diagnosed in women! Studies have shown that many Americans no very little, if anything about lupus. Due to the prevalence of this chronic autoimmune disease, a day has been set aside so that the lupus community as a whole can come together and help to spread lupus awareness globally. Officially May 10 is World Lupus Day, and the month of May is seen as Lupus Awareness Month.

Organizations Helping to Spread Lupus Awareness

Lupus Foundation of America (LFA): This foundation was established back in 1977 along with a number of other lupus organizations. Since its creation, the Lupus Foundation of America has gone on to become the largest national non-profit voluntary health organization devoted to finding a cure for lupus and improving the quality of life for those with this disease. Since LFA was established, it has also become the oldest lupus organization in America. The LFA has over 300 chapters and support groups across the U.S. which work to offer support, services, and hope to anyone who has been affected by lupus in anyway. In its time, the LFA has become a huge supporter of lupus research, education, and advocacy while effectively creating programs which have brought awareness to many around the country. LFA has 5 main focuses which help them achieve success: 1. Increase public Awareness. 2. Make sure new information is readily available to those with lupus. 3. Allocate funds for lupus clinical research nationally through their research program, Bringing Down the Barriers. 4. Fight for increased support and advocacy of lupus in the private and public sectors. 5. Provide unwavering support for the lupus patients and their families.

Alliance for Lupus Research (ALR): The Alliance for Lupus Research is a national voluntary health organization which was founded in New York City back in 1999. In their relatively short history, ALR has been very successful in securing significant funds for lupus research. ALR’s mission is to help develop better treatments and to ultimately discover a cure for systemic lupus erythematosus. They have been able to commit millions of dollars to lupus research every year through various fundraising efforts which they coordinate annually. One of their more famous fundraisers is the Walk with Us to Cure Lupus annual charity walk. This walk has been quite successful in both raising significant funds and spreading awareness for the disease. ALR was proud to provide funding for the International Systemic Lupus Erythematosus Genetics (SLEGEN) Consortium, whose research was able to identify several of the genes which are associated with lupus. This organization has provided more money than any non-governmental agency in the world for lupus research. 100% of all donations made to ALR go to clinical research for lupus.

Lupus Research Institute (LRI): This institute is a national non-profit organization which is completely dedicated to brand new lupus research. The ideology at the Lupus Research Institute (LRI) is that the most effective and safest treatments can only be found by pursuing innovative research. This organization was established back in 2000, and since then has grown rapidly. They now have a wide range of lupus research studies taking place across the country. LRI has funded research which has been making compelling breakthroughs in lupus genetics and understanding the process of the disease.

S.L.E. Lupus Foundation: This non-profit health organization was founded back in 1970. Since its founding, S.L.E. has been completely dedicated to helping lupus patients and their families live a better quality of life. This foundation has become a national leader in providing direct services to patients, public awareness, education, and funding new clinical research on lupus all around America. This foundation has been focused on helping many thousands of families effectively deal with the pressures and confusion of daily life with a debilitating autoimmune disease. The headquarters of the S.L.E. Lupus Foundation is located in New York City, but they also have a division located in Los Angeles. With their success, S.L.E. is able to provide significant research grants and fellowship awards to medical researchers in the New York and Southern California regions. The S.L.E. Lupus Foundation and the Lupus Research Institute were founded by Morrie Golick, and they both are part of a National Coalition of lupus organizations dedicated to supporting new innovative lupus research.

 
 

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